Hi Everyone,
We are going for another round of appointments, which includes some routine blood work this time. This Wednesday Milaniya will be meeting her Pediatrician for the first time and will be doing another GI follow-up. Things have been going really well for her, but still has those xanthomas that seem to be popping up everywhere around her legs, feet, hands, and even slowly around her eye. I hope to get some answers on a medication they hope to put her on called statens (hope this is the proper spelling)to help reduce her cholesterol that's at 900 last time we checked.
Well this is it for now. I hope to share some pictures of how bad her xanthomas have gotten and share a little bit more information about what this is.
Good night!
Stephanie
About Me
- Milaniya's Brief Bio
- I'm currently 3 years old and reside in Northern California. I was born with a rare genetic liver disorder called Alagilles Syndrome that occurs in 1 in 100,000 live births. Although life may be tough sometimes I'm a very happy little girl who enjoys the company of family, my pets - Mia and Joey, and all the cool toys/gadgets I have to play with. Please stop by my site for the latest update on my life!
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