About Me
- Milaniya's Brief Bio
- I'm currently 3 years old and reside in Northern California. I was born with a rare genetic liver disorder called Alagilles Syndrome that occurs in 1 in 100,000 live births. Although life may be tough sometimes I'm a very happy little girl who enjoys the company of family, my pets - Mia and Joey, and all the cool toys/gadgets I have to play with. Please stop by my site for the latest update on my life!
Wednesday, November 24, 2010
Friday, November 19, 2010
Officially a "California Girl...."
Hi everyone,
Where has the time gone? This month has been particularly busy for myself. I've officially become a California resident. I was quite surprised by the process of getting my car registered and how much it cost! The crazy thing about the process was a written exam I had to pass in order to receive a drivers license. I have to admit was caught off guard and unfortunately did not pass the first time around (should have read the handbook - my fault). So, finally after my second and final visit to the DMV I passed on Thursday, November 18, 2010. Thank God you're able to re-take the exam up to 3 times otherwise I would be in trouble.
Now on the Milaniya front she is taking a new medication called lipitor to reduce her cholesterol. She's into the 2nd week and will be going for lab work tomorrow to see if there is improvement. Some of the recent issues we are seeing is her front tooth begin to turn color. Not sure if it is due to her meds or from a fall she had so keeping close eye on it. Not sure if any of you AGS families have issues with teeth color changes?
Well hope everyone has a safe and Happy Thanksgiving. If you have a good Thanksgiving recipe I'm open for some ideas?
Stephanie
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Where has the time gone? This month has been particularly busy for myself. I've officially become a California resident. I was quite surprised by the process of getting my car registered and how much it cost! The crazy thing about the process was a written exam I had to pass in order to receive a drivers license. I have to admit was caught off guard and unfortunately did not pass the first time around (should have read the handbook - my fault). So, finally after my second and final visit to the DMV I passed on Thursday, November 18, 2010. Thank God you're able to re-take the exam up to 3 times otherwise I would be in trouble.
Now on the Milaniya front she is taking a new medication called lipitor to reduce her cholesterol. She's into the 2nd week and will be going for lab work tomorrow to see if there is improvement. Some of the recent issues we are seeing is her front tooth begin to turn color. Not sure if it is due to her meds or from a fall she had so keeping close eye on it. Not sure if any of you AGS families have issues with teeth color changes?
Well hope everyone has a safe and Happy Thanksgiving. If you have a good Thanksgiving recipe I'm open for some ideas?
Stephanie
Follow Me on Twitter
Follow Me on Facebook
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