About Me

I'm currently 3 years old and reside in Northern California. I was born with a rare genetic liver disorder called Alagilles Syndrome that occurs in 1 in 100,000 live births. Although life may be tough sometimes I'm a very happy little girl who enjoys the company of family, my pets - Mia and Joey, and all the cool toys/gadgets I have to play with. Please stop by my site for the latest update on my life!

Tuesday, October 12, 2010

Her heart is strong and pumping

All,

Milaniya had her first cardiology appointment at Lucille Packard Childrens Hospital out here since relocating to Bay area.  She had a very long echo cardiogram performed, which I'm happy to report her heart is strong and pumping! Although, she's had what they call mild PPS and murmur there is nothing we need to be concerned with.  The only thing they are looking to possibly put her on is a medication called staten (hopefully I spelled this right). More to come on this.

The best news was when Dr. Ping stated "will see you in 2 years!"  This is the kind of news AGS parents like to hear. 

See her goofy picture on twitter!

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