We were able to be part of a very important fundraising / awareness event hosted by the Chow family called "Walk and Jump" in participation with the 2010 Alagille Alliance virtual walk here in the Bay area. This took place on Sunday, September 26th. The turn out for this event was amazing! Not only did all those attending have a great time, but having opportunity to connect with other families who know exactly what I go through each day battling this syndrome is a God send.
Below are the 2 videos from this event capturing the walk (aka parade since we had music and instruments to help entertain the group). Enjoy!!!
Part I: Walk
http://www.youtube.com/watch?v=Ef9Sv_SQOOA
*I will be sharing the photo album of this event soon, but for now please enjoy the videos. Sorry it was so late getting this to everyone.
Thanks again to the Chow family for coordinating this event and glad to be part of its success.
Stephanie
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